Building a user-centered guide for chronic pain management decisions
Integrating users' perspectives during the development of the Chronic Pain Recommendation Map: protocol for a qualitative descriptive study.
AI Summary
Chronic pain affects one in five people globally, yet treatment guidelines remain fragmented and often conflict with each other, leading to suboptimal care and confusion among patients and providers. This research describes a new initiative to address that gap: the development of a digital Chronic Pain Recommendation Map (e-Chronic Pain RecMap), a freely accessible platform designed to synthesize evidence-based recommendations for managing chronic pain. Importantly, the platform will focus on three priority areas: opioids, cannabis, and spine-related interventional procedures—recognizing that cannabis has become an increasingly important consideration in pain management discussions.
This study uses a qualitative descriptive approach to integrate the perspectives of multiple stakeholder groups during the RecMap's development. The researchers will conduct online interviews with approximately 20 participants, carefully sampled to represent health researchers, healthcare providers, people with lived experience of chronic pain, and policymakers. By gathering feedback on the platform's design, usability, content relevance, and clarity throughout development, the team aims to create a resource that genuinely meets user needs and expectations. This participatory approach is significant because it ensures that real-world perspectives—particularly from patients who actually use cannabis or other pain management strategies—help shape an evidence-based tool.
The ultimate goal is to improve pain literacy and increase alignment between research evidence and clinical practice. By making high-quality, synthesized recommendations freely available in an easy-to-navigate digital format, the RecMap has the potential to help both patients and healthcare providers make more informed decisions about treatment options, including cannabis. This research represents an important step toward reducing confusion in chronic pain management and democratizing access to reliable, integrated evidence that respects the complexity of individual pain experiences.
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